Here’s My Diagnosis Story. What’s Yours?

What’s your diagnosis journey? Our patient advocate Lana describes hers. If you were reading a book or watching a movie about a person with a disease, the main character’s chronic illness would have some dramatic beginning: a fall, an accident, a lump, or a call from the doctor about a test result. But in real…

What’s Wrong With Me?

What has been your diagnosis journey? Our patient advocate Lana describes hers. If you were reading a book or watching a movie about a person with a disease, the main character’s chronic illness would have some dramatic beginning: a fall, an accident, a lump, or a call from the doctor about a test result. But…

Don’t let a misdiagnosis deter you

I do not recall the exact date that my symptoms started or even what triggered my symptoms.  I do not even recall the date of my diagnosis.  What I do know is that it took me nearly ten years to get a correct diagnosis and I recall many of the details of that experience.  I…