Here are nine things chronically ill people want their loved ones to know:
1. Our grief is ongoing
Angie, age 17: “I wish my parents understood that my grief over my health is reoccurring. It is gone sometimes, but it always returns.”
Before getting sick, you don’t know the ongoing struggles that force you to continually grieve. And there is a lot to grieve over. You are not as productive as you once were. You have lost friends, the ability to take part in your favorite activities and your independence. Grief comes in waves and sometimes, out of the blue. One minute, you are accepting the changes and challenges that chronic illness brings to your life, and the next, you are overcome with sadness or anger.